(This post is quite different from my usual, but please hang in there with me because I would love your help. Thank you!)
I was talking to a nurse on the phone, wondering if I should come in to see my OB/GYN, the one who I saw through my pregnancies and deliveries with both Asher and Elsie. The nurse said that what I was describing was “post tubal ligation syndrome”.
This is not what I was expecting to hear even though I had been researching online and feeling more and more certain that my tubal ligation was to blame for how awful I’m feeling. Not long after Elsie was born, I had this heart-gut feeling that my increased anxiety and depression (and some other physical issues) were due to having had my tubes tied when I had my c-section. But even though I felt strongly that having a tubal has caused something, I didn’t understand what it was. To be honest, I didn’t research exactly how a tubal ligation works before I had one, I was thinking of it in very simple terms. Attach clips to tubes. Don’t get pregnant. I didn’t think having my tubes tied did anything hormonal, so I couldn’t figure out why my gut was telling me my symptoms and the tubal were related. But then the nurse said “post tubal ligation syndrome” and I was stunned by validation.
Not only had the nurse’s words shocked me (I was all, UM, there’s a syndrome for this?), but I had also talked with several women who also had tubal ligations that resulted in some kind of problem for them, many of which were very similar problems to mine.
So, I headed into an appointment with my OB/GYN expecting her to be on the same page and when she wasn’t, I felt defeated and confused. She said she wasn’t sure what the nurse was referring to and hadn’t seen any other women coming in with the complaints that I have. She suggested that the way I’m feeling may simply be a result of being in the postpartum period and breastfeeding. She did admit that tubal ligations become problematic for some women because they can cut off the blood supply to the ovaries, causing early menopause.
Super.
I had no idea that was a possibility when I signed my life away and then had my tubes tied. And no matter what any doctor tells me, I’m convinced that what the nurse said is true–this is common and a really big deal, and I believe it goes beyond the possibility of early menopause–the issues I’m having include menopausal symptoms and more. So I’m writing about it here for two reasons. I want to hear from any of you who have had your tubes tied, and I want to encourage women to do a lot of research before having their tubes tied.
Because I’m currently struggling with a myriad of complications, I want to do a little research of my very own. If you or someone you know has had a tubal ligation, could you email me? I’d like to send you a few questions. I would be forever grateful for your input and time. I know that I’m on to something here and I need your help.
heatheroftheeo(at)gmail(dot)com
I’ve already talked to women (without filling their minds with all kinds of suspicions of what can happen after a tubal) who report my same symptoms and other symptoms similar to one another’s, and they had no idea it could be because of their tubal ligation. Someone close to me was even recently telling me that she went into early menopause and was struggling with numerous symptoms and was put on hormone replacement treatments. And I was all, YOU HAD YOUR TUBES TIED, DIDN’T YOU? and she was all, Yeah, why? And I said something like ACK OMG MY DOC SAID EARLY MENOPAUSE!
Now, even though it really sucks to be going through this, it’s good to know WHY I’ve been feeling like I have. And even though it’s really hard, I’m grateful to be able to talk about this and to embark on learning more about it.
Two disclaimers:
1. Obviously, I’m not a medical professional. I’m just a woman telling her story. I’m also not doctor-bashing. I have no idea why women aren’t told that there’s a possibility that these symptoms may arise if they get their tubes tied. I’m still trying to wrap my head around it and learning as I go.
2. I am in no way telling anyone what to do with their bodies. Read my words and take ‘em or leave ‘em. I know it’s important to have this option for birth control available. I’m simply hoping to make people more aware of the “after-effects” of a tubal ligation and to discover the truth for myself. (BUT. PLEASE do your research before you make your decision about a tubal ligation.)
Thank you for reading about my freaking fallopian tubes, ya’ll. Who knows? Maybe some day soon I’ll tell you all about my spleen or my gall bladder or something. You are so lucky.
(There is now a Part 2 to this post which shares my myriad of symptoms and those of others I’ve heard from. Many many others.)
{ 148 comments… read them below or add one }
Wow, Heather! I’m 42 and have never heard of this before. I didn’t have my tubes tied, but I am in early menopause…luckily my symptoms thus far have been minor.
I hope you get some good responses, and some answers. Hugs.
Ugh, indeed. I have no experience with this, but maybe Gina (the feminist breeder) would know. This is just the sort of thing she knows about.
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Oh, thank you Pamela! I’ll check with Gina. What a great suggestion. I appreciate it!
Wow Heather, I had no idea a tubal ligation had such side effects. I have been considering this for myself in May when our last one arrives. Thank you for giving me something to think about.
Deanna,
This is one of the reasons that I’m talking about this. I want to help women be sure to really check into this. If I would have known it was even a remote possibility that my hormones would be all messed up, I never would have done it. We struggle enough as women, no? :) All the best to you and yours…
Heather, please feel free to email me.
I had my tubes tied after having my twins and have regretted it every day since. I definitely suffer from p.t.s. and wish like heck I never had it.done. (I tell everyone I know to have hubbub get a snip instead…)
Sooo many awful side effects, including early menopause. (& facial hair growth!)
Hate it.
You aren’t alone. Sadly.
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Oh Debi, I’m sorry. BUH!
How did you know it was from the tubal? How did you know it’s a “thing”-PTS? Would you ever have a reversal? Sheesh, I’m full of questions. Thank you!!!
Deb, I just read your post, and cried though the whole thing. I too have gotten my tubes tied about 1 year ago and have regretted it everyday since. Even though I have two wonderful boys. I still feel a emptiest / saddest. I found my self crying just the other day after getting rid of some of the boys clothes that they out grow.
What makes things worse is my sister-in-law is getting ready to have another baby soon in Dec. And they just had to tell me on my birthday the news. All I could say was Congrats, but really I was dying inside.
Sorry, for having a little feel sorry for myself party. It’s just helps to know that
someone else has / going though something kind of like what I’m going though.
Wow! I did not know any of this. Thank you so much for putting this out there. I know I wouldn’t have researched this if I ever decided to have it done. I just figured it was a simple procedure and then that was the end of it.
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I had my tubes tied in 2002, after a c-section with my third child. I’d never heard of this syndrome until I read your post, and I don’t seem to have any of the symptoms. Not menopausal or with weird hormonal symptoms.
I don’t know what that means, except maybe that it doesn’t happen to everyone. If that’s encouraging at all. Feel free to email me if you have questions.
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Thanks, Heather, for exploring this here. I had no idea. Haven’t had tubes tied and won’t, but people need to know.
Suebob recently posted..You Will All Be Driving Toyotas By the Time I’m Done With You
I had my tubes tied after my EJ, so far I haven’t noticed anything, but please feel free to email me and I will help any way I can.
You know, mommy, I don’t know anything about tubal ligation, but you should definitely trust your gut and find a doctor who will listen to you. You know when something is wrong with your body. This must be so frustrating.
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I had my tubes tied post triplets… you can ask me anything.
Last week my husband, my ob, and I were discussing what to do after our seventh — and second high risk — is born this summer. He mentioned this very thing and that he has many women come in with these complaints and he recommends a different path than tubal. To hear you confirm what he was saying makes me grateful for a fantastic doc!
I’m so reassured hearing this. Thank you, Marlowe. It’s good to know there are docs out there that see these problems and take them seriously.
All the best to you and yours!
Tubes tied in 2009 after birth of twins (my second and third children). Like you I didn’t do much research prior to the procedure. When my periods returned they were very heavy and irregular (shorter cycles). Read some conflicting information about causes. There doesn’t seem to be a lot of info available for post-tubal changes.
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It’s true. There isn’t a lot of information, especially medical literature, studies, research, etc. Hard to find, anyway.
Hello heather my name is Claudine I’ve had them tide for seven years now and i feel exactly what you been talking about i have never been right ever since my emotion seems out of whack like I’m having hormonal issues I’m always feeling depressed for no apparent reason at times i can be happy for a moment and be sad the next i went to the doctor they gave me birth control when i was younger my cycle was never a balanced one but the moment i tied my tubes i made it worse i can never feel happy and stay happy confidence level is so low its hard to make solid decision it keeps me feeling negative i don’t even know if I’m making since to you or not. email me.
I have had mine tied if you want to email me.
Oh, Heather, I’m sorry you are going through yet another crisis! It just doesn’t seem fair. Early menopause whilst nursing has got to be about as hormonal as it gets. NOT. FUN.
Haven’t heard of this before, but glad you mentioned it because I was (possibly still am?) planning on having my tubes tied after baby is delivered in April. We’ve talked about vasectomy for husband and what not, but with me having a c-section already, it just seemed simpler to have it done right then and there while my fallopian tubes are open on the table, know what I mean? I’ll be sure to do some more research though, as well as have nice and friendly heart to heart with my doctor, whom I love and trust immensely. So, thank you for the heads up! I hope you find some answers for your own self very, very soon.
That’s what I thought too, Jenny. Since they’d already be in there, they may as well just clip up those tubes! I encourage you to thoroughly check into this before doing it. Not everyone has complications but it is very common. You wouldn’t believe how many emails I’m getting. It’s not at all fun to live with, so….
I don’t mean to scare people at all…I just want people to be as informed and careful as possible. Maybe some things are just not meant to be done to our bodies. I’m no expert, but that’s what my heart-gut tells me.
All the best to you, mama.
so true i really regret doing it
I didn’t have my tubes tied. My next door neighbor did a tubal ligation because her spouse was unwilling to have a vasectomy. He now says if he’d had any idea how much it would impact her hormones, he would have done the Big V. The Big V isn’t ideal either- my spouse had it done and has lived with some tenderness ever since. I totally regret pushing him to have a vasectomy. Guess we shouldn’t have opted for either of the permanent options (especially since we had infertility in the first place- we were just formally closing a door that hadn’t really ever ‘opened’ without doctors and meds prying it open!)
I had my tubes tied, in September of 08. I started having odd symptoms too. I would love to talk to you further about this! Now I’m off to google post tubal ligation syndrome. :p
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Ack, Heather, I’m sorry. And I’m really, really grateful that you wrote this post. I’ve been thinking about speaking up on all the issues I’ve had after a similarly “harmless” procedure for woman (a D&C) and advising women to research more before they have the procedure and I’ve been afraid a bit that people would think I’m telling them what to do.
Good luck with all you have going on. I haven’t even had kids yet, so certainly can’t relate on this particular problem, but have had other medical problems recently. I would suggest that you find another OB/GYN who will take your symptoms seriously and work with you to find some treatments that will help.
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I haven’t had this, so I don’t have any real wisdom. But I do know several people who have, and at least one of them had “some complications” afterwards. Maybe you could get a second opinion from another doctor? Have you thought about having it reversed? (that might be too personal, and if so, please don’t answer it!)
I just want to tell you thank you for writing about this. I really believe that using a blog to give voice to the hard things, or the not-often-discussed things can be a real blessing to other people.
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Tracie, Yes. I do want to have it reversed. I’ll be looking for a new to me OBGYN that will do it. My current one said she would not. And yes, I so hope writing about this will help people. I’d love to help even one person avoid this.
i want that done also but unfortunately i don’t have funds like that at all i feel like i ‘m about to lose it some times i wish someone can help.
I have been considering getting my tubes tied for a long time, because I have 4 children, (and we are adopting a 5th!). I tried to have it done while my husband was deployed and it didn’t happen because the doc essentially said I needed my husband’s permission…… yeah. I was kinda mad about that! But after reading this I’m wondering if I shouldn’t be grateful instead!! I ended up getting a non-hormonal IUD (paraguard) because any hormones at all mess me up so I couldn’t take the pill etc. It’s good for 10 years so maybe I will just stick with that and leave my tubes alone. Sorry you are going through this but thanks for the heads up!!!!
I just emailed you. I had my tubes tied at 37, after birth of last baby. Have had issues ever since. All detailed in my email. So thankful you are doing this post.
WOW, so glad that Suebob linked this!
Scary, sad, fascinating.
Good Luck! [which, uh, I know isn't maybe the most helpful, but, Wishing you well with finding betterness.]
So frustrating when your doctor is dissmissive of your fears and concerns. I’m sure she didn’t mean to communicate that, but still. Wonder if it would be worth it to see someone else? It would be nice to have a doctor who could walk this road with you and provide guidance and support. So sorry to hear that you’re struggling.
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Yes. I’ll definitely be seeing someone else. She’s been good to me in the past but seems unsure or kind of guarded about this. So…yeah, we’ll move on :)
Had my tubes tied 3 1/2 years ago after my fourth was born. It never occurred to me that the worsening depression and wild hormone swings could be as a result of the tubal rather than just a function of being 41 and overwhelmed. Happy to answer any questions.
Had tubes tied in November 2008 during an extremely traumatic birth situation. Lots of fall out, but not clear which parts are from which thing, if you know what I mean. Plus, it’s not as if my menstrual life had been all roses and sunshine before kids. Please feel free to contact me if you want to ask questions, talk, whatever.
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Hey Heather. Sorry you’re having a difficult time! I had my tubes tied March 2006. Would love to answer your questions, if you still need participants.
XO – Ashlei
What a bummer!!! This might sound weird but it might help for you to see a naturopath. They might be able to take things from a different perspective and tell you how it’s affecting your body wholistically. Either way, hope it gets better!
No that’s not weird, Sarah. My sister has a good one and I plan to work with her on this. Thank you!
I haven’t had my tubes tied, but I always assumed I would if I got pregnant one more time. I’d never heard of this. It looks like I have some research to do, too.
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I had my tubes tied nearly 10 years ago. I definitely had a lot of emotional issues after, but I can’t recall any physical ones. Please feel free to ask me anything. And I’m so sorry you’re having trouble.
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Hello, I had my tubes tied 8 years ago after I my 4th child was born. I have definitely seen a difference in my cycle and in my moods. :o/ Not good changes either. Thanks for looking into this and giving information.
A woman in our church had an eptopic pregnancy years after having her tubes tied…and almost died because of it. She ended up having an emergency hysterectomy to save her life. The doctors said this was because of the tubal ligation. I haven’t done any research on the emotional/physical side effects of tubal ligation, but this woman’s experience was enough to keep me far away from ever considering it.
Side note: You can always have them untied!
This sounds similar in many ways to my struggle with using hormonal birth control a few years ago. It is part of what has led me to such a passion about women’s health. We have a right to know all the facts and to make decisions for ourselves along side our doctors about our bodies! Haha, see? Passion! I’ve been praying for you since you talked about your depression and anxiety a little bit ago, and I will continue to. I hope at least knowing the source of the problems leads to some healing.
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I’m getting quite passionate about this, too, Shannon! You are so right. We have to listen to ourselves and stand by our needs. Thank you for your prayers!
I have not had my tubes tied, but I do want to tell you that there are several things OB/GYNs do not tell, or are not up to date on. Tubal Ligation is one of them. I’ve known several women to have tubals or hysterectomies. All have suffered some variation of pre-menopause, depression, general anxiety, or panic disorders.
Case in point: I am a DES daughter, and it took me developing cervical cancer (recurrance) at 19 before someone told me 1) that I was a DES daughter, and that 2) I should have never been placed on birth control (you know that caveat of “certain types of cancer?” YEAH.). Now I’ve cut all kinds of hormones from my life (no soy, no bovine growth hormone, no birth control, etc) and I have been in remission for nearly 11 years.
Also, I will never go on HRT. I watched an interview with a doctor several years ago, and one quote from her has stuck with me: “No woman has ever died from menopause. No woman has died from hot flashes. But, women die of breast cancer, uterine and ovarian cancer every day.”
I can’t tell you or other readers what will work best for you, but I do believe (with all of my heart) that the more we mess with the system…
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Wow – I have been feeling the same since my tubal in June, 2010. I wasn’t told of any of these sides effects and have had an increase in anxiety ever since. Would love to learn and discuss some more.
I had mine done three years ago this March, and have regretted it ever since. I was a poor candidate for the Pill (sent my blood pressure sky rocketing) and thought this was the best option at the time, the whole thing was handled badly. I wound up having to deliver five weeks early and my OB seemed to think it was just fine to waive the 30 day wait period and post date the consent forms. I would get a reversal in a minute and wish I had been better informed on how the tubal would wreak havoc on my moods and cycle. And to the previous poster who mentioned facial hair, YES! I never linked it to my tubal but it makes perfect sense.
I had my tubal ligation in 2003 (and told them to make it irreversible, so they threw away the excess and cauterized the ends instead of rolling it up and clipping) so I would never get pregnant again. If I die and hubby remarries, I wouldn’t have a problem with him fathering more children, he makes great kids :), but I know I don’t want to birth anymore of my own so that’s why I wanted it instead of him getting the V (plus, I know a couple who got pregnant after he had a vasectomy and then AGAIN after his SECOND vasectomy; she got a TL after that one).
The options I thought I had at the time were me getting a tubal ligation, hubby getting a vasectomy, IUD (I didn’t like that for me when I read about it; maybe it was the side effects or complications that can arise from it, I can’t remember), birth control pills (that doesn’t come with as good of a guarantee to not getting pregnant as a TL, I’m not consistent in pill taking, and don’t want to take them until by body’s done with menopause that can last up to 10 years), condoms (have you watched FRIENDS to know their track record ain’t that great either), or abstinence (um, no, I’m married).
The symptoms I’ve had since (and perhaps prior, but I wasn’t hyper aware then) point toward a thyroid issue (both grandmothers had issues), perhaps it’s hormonal, part of being a mom, aging, environment, food quality/altering, menopause, or any myriad of causes. The trick is assigning these changes/issues to one source; maybe there are others, maybe combined with something else is what’s causing it. You are right about how little research can be found regarding some women’s health issues.
I’ve heard of all sorts of hormone problems from tubal ligations (tying/clamping tubes), vasectomies (yes, even men struggle with hormone issues afterwards), and the newer procedure where they “cap” your fallopian tubes with a plastic cap (not sure about the exact name for this procedure). I think of it this way, those areas were all meant to be “free-flowing” (at least until menopause for women), so it’s kind of like having a colonstomy bag that is never emptied? Just my own analogy. Unfortunately we live in a world where many procedures/drugs are considered normal and no big deal. My heart goes out to women dealing with this and shame on any doctor for not considering there might be a real problem, though I do think that recent pregnancy and breastfeeding (Lots of hormones released recently and currently) could definitely make TLS worse. I think there is a recent advent of more women getting this procedure immediately after having a baby and also younger women having it done than before. This might make it a more recent phenomenon. In dealing with b.c. myself, we did a lot of researching before deciding on the Creighton Model of NFP. Many may scoff at NFP because it’s not a quick fix, but for a committed couple who has similar views on planning their family, it’s GREAT! And since it’s not a quick fix, but something you have to “work” at, it has NO side effects. Blessings to you Heather as you try to figure this out and as you have made yourself vulnerable in sharing, may many others learn and be blessed by you!
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I had a hysterectomy instead of a tubal, mainly because I wanted it all done at once (long story). One of the reasons I chose that option is because my mother had a tubal and she had many, many of the same symptoms you mention in your next post. I was scared if I had a tubal that the same thing would happen to me and I would just end up with the hysterectomy anyway. Something interesting to me, I still have one of my ovaries and after four years I have experienced no pre-menopausal symptoms. Very odd.
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Heather, I had a tubal in September of 2011, and my body completely revolted afterward. This was my fourth pregnancy and fourth delivery, but first c-section and (obviously) only tubal. I wrote about my experience in five parts (here’s the link to part 5, which contains links to the first four parts if you’re interested http://katandgray.blogspot.com/2011/10/part-5-light-at-end-of-tunnel.html ) and am still in the midst of some of the symptoms. My OB and psychiatrist (who I have to see as a result of the insomnia) both say it’s not related to the tubal … but I’m not so sure. I will go read part 2 of your story now!
I too have PTLS after having my TL at 42 it has been down hill since then including joint pain on my right side and now I am pre-menopausal. I am considering a reversal at 46 to perhaps ease the pain. Would you consider doing this as well or have you?
Hi, I also have ptls (severe) and I am also considering a tubal reversal hopefully i will be able to have it done by the end of this year, I had a tubal when I was 27 and it has been a roller coaster physically and emotionally ( crying ,anixety ) and I just want it to stop I am so desperate for relief but I just dont have the money to have a tubal right now and I have not found a doctor that will listen to me they just think it is in my head and that I am depressed . Any suggestions
Wow. I haven’t heard of this before. But I do know how horrible hormones are and how certain procedures effect women differently. After I had my son, I had a copper IUD put in place. I had SO many issues with depression, anxiety, and crazy rage attacks shortly thereafter. For along time, I wrote it off as postpartum depression, adjusting to being a mom, sleep deprivation, and all of that. But as time went on, it didn’t go away. I got lucky in that my IUD moved up into my uterus (yes, I understand that doesn’t sound very lucky, but wait for the end of the story). They had to remove my IUD. Within a few days of my IUD being removed, my depression lessened, the anxiety decreased, and I no longer wanted to kill people. I am convinced that my IUD was the culprit. It’s not the same as your procedure, however, I really think there are so many side effects that can happen with our reproductive systems that NEVER get disclosed or talked about in a clinical setting.
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Everything started when I got my tubes tied in May of 2007! I went to another OBGYN today and he told me that PTLS existed but that the insurance would not cover and he would have to remove my tubes to take care of the problem. He said the tubes had nothing to do with the cycle and at the same time he would put a heated balloon in my uterus to take away the bleeding. I looked at him like he was crazy and left his office in discouraged but not without hope. I felt like he was trying to sell me another lie. So if this didn’t work it would be a hysterectomy and being on hormones for the rest of my life. I spoke to a woman at his office before the appointment and she said she had PTLS and she had a reversal and it took care of the problem. So I don’t understand why the doctor after saying that I had PTLS would not encourage me to get a reversal!!!
I had a tubal after a csection of my 3rd child in 2006. I was urged to do so because I had preeclampsia with my pregnancies. Since then, I have had so many problems. I have been to so many doctors who pretty much tell me I’m okay and give me pills. I stumbled across your blog tonight. This is the first I have ever heard of this. It explains so much. I read that doctors say women are complaining because before they got tubals they took the pill for years and that’s what is causing the symptoms. Withdrawal from the hormones in the pill. I hadn’t taken the pill in years! So that is not what happened. Doctors don’t want to recognize this as a serious issue because so many women have had the procedure done. The amount of lawsuits filed would be insane. They feel if they can keep women thinking it’s all in our head, they stay in the clear. If you want to get a tubal, please please reconsider.
Obviously, I’m more than a little late to the party. BUT. I’ve been dealing with some ovary/uterus issues for the past few months, and the longer this goes on, the more I realize…doctors don’t really have any more idea than we do about what goes on in there. I mean, it’s not like you can put it under a microscope and watch things develop. And things that seem really, really major to a woman in pain…just don’t get a doctor all that excited. (Heard that one from a friend who nurses in the ER.) No, I’m not doctor bashing at ALL. I’m just saying…basically what you are. Do your homework. And trust your gut.
And much love to you, Heather, as you get through this!!!!
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I have had my tubes tied for 18 years. The past 4 have been miserable. I have had menopausal symptoms for the past 12 years atleast. I have mood swings and suffered a divorce after 12 years of marriage and many failed relationships. The fights occurred monthly. Prior to tubal ligation I was a happy, pushover that never knew a period was coming. I feel the tubal changed me..for the worse. I have had many tests run. PMS doesn’t run in my family. My mother never had a tubal and she has never raised her voice in her life. I am her made over except for the unhappiness. I have no mental issues, no childhood stresses or abuse, no hormone imbalance. I have been checked for all medical problems. Doc put me on Prozac in 2005 and I was a zombie..I hated it. He said I had PMDD. But I know it’s from the tubal ligation. All women may not experience this but I have spoken to atleast 15 women in the past years that had tubals and we all have the same symptoms. I can deal with all symptoms but not the mood swings. Stress amplifies them to terrifying. My symptoms since age 30 are anxiety, mood swings, night sweats, hot flashes, breast tenderness that is excrutiating, stabbing pains in the area where my ovaries are, and no sex drive at all.. I have been married to a wonderful man for 7 years and I pray he can know the person I was before this. Seriously considering a tubal reversal. I have read reports that woman experienced real change. A few said no change…what to do?? I am 40 years old.. praying for an answer. Good luck to you :)
Hi I know what your going through. I had my tubes clamped 10 yrs ago and omg dod the symptoms start riggt away. I cry all the time and that never happened. My periods are 10you times worse. I cramp so baf it’s like labor pains the first day. Then my periods heavy for 5you days before it lightens. I have sore full breasts 2 weeks before my period and i’m cranky for 2you weeks. I sweat all the time like menopause.I want this procedure reversed so I could feel alive again. I’m depressed a lot pf the time amd no one qill help me reverse this eithout paying thpusands of dollars. Good luck.
You have no idea how amazing this is–to find this. I had my tubes tied 4 years ago and my life changed drastically. It didn’t happen fast, but steadily my life is not what it was. Of the nearly 40 symptoms, I have 35. My marriage has been near divorce over it. How do you explain to your husband that the idea of sex is repulsive without offending him? I have so many emotions over this I am no where near beginning to sort them out. I go to the doctor May 29th and I feel very sure he is going to say it is in my head. Luckily, since we have found out about this–my husband fully agrees with me that this is what is wrong and that it’s not in my head. The problem is–no insurance company will cover a reversal, and I don’t want to have a hysterectomy at 32! I’m just praying for some answers and for blogs like this that show me I’m not alone (and by extension, not crazy!).
This hospital tied my tubs without my permission left me in excruciating pain and bleeding no one came to check on me but one nurse who complained i was crying to much no doctor never came to check on me to this day I live in pain from the surgery and from not being able to have any more kids and with a disfigure belly and loss of memory by the time I found out the statue of limitation was up it took me 7 years to piece memories together to recollect that day after I had my baby four nurses tried to convince me to tie my tubs I was very a dement about not having it done I ask what else can I do I suggested IUD they told dr lolylld lee he said well I may as well go back to the office I agreed with him next a nurse comes in with a needle I asked her what is tha for she said to relax u I Said i don’t need it I had my baby already well the dr told me to give it to u I said I don’t need it she put it in my I V anyway. I remembered feeling like I was in church worshiping the lord and feeling his presents and Him asking me now do u want your tubs tied. I woke up n pain and today this day im in pain no dr can find where out why this pain is they just give me pain medicine. I will never forget this day it has ruined my complete life i lost my husband and myself my kids lost a mother By the time I had a MRI done it was to late to sue the statue of limitation was up which also makes no since to me because from the time i was sure i knew what happen to prove mentally and medically that’s when time should have started it ruined my mental n physically n emotionally for ever I suffer from these symptoms
Increased Fatigue – Increasing to the point where there are days that all you want to do is sleep. Impossible to keep up with demands of family and work.
Feeling Doom – Like there is a black cloud over your head and you are convinced that something bad is about to happen.
Anxiety Issues – This is quite noticeable in women that have never had anxiety. These women have no idea what they are experiencing or why.
Memory Loss and Foggy Feeling – it feels as though your brain is in a “fog”. Becoming forgetful (which can be very scary).
Skin Issues – Some describe the feeling as though something is crawling on your skin. Acne can also become an issue.
Hair Loss – Scalp thins while hair growth becomes greater on other parts of the body, such as facial hair and hair around nipples.
Migraines – These can be debilitating.
Feeling of pelvic fullness and sharp stabbing pains at ovulation time.
Breast Milk Production Declines- Noticed by women who had multiple children and never had a problem with producing milk before tubal ligation. After tubal ligation they may not have enough milk to meet their baby’s needs on nursing alone.
Changes In Breast – Breasts may become very tender. There may also be a loss of tissue mass.
Menstrual Abnormalities – Periods can be extremely heavy and painful with clotting. Cycle is not regular. None of these things happened before tubal ligation.
Wow, i just had a tubal last week and really freaked out know it was hormonal or emotional yesterday but couldn’t figure out why. I got to wondering this morning if it is linked to the surgery. Has anybody found anything natural that has helped?
I’ve heard that natural hormone creams help (progesterone and testosterone) I’ve also gone off gluten and found that it’s helped all my symptoms. Sometimes hormonal changes can make us react differently to our usual diet.
Good luck to you!
Hey Heather! I had a tubal ligation in August 2011 and have suffered from PTLS. I have had horrible symptoms and I am planning on having a reversal as soon as I can……If u want to read about women who are suffering from PTLS there is a Facebook private group and you can go to chapelhilltubalreversal.net. Please feel free to email me any questions or if you need some encouragement!
Thank you for this. I appreciate the resources so much. I hope you’re able to have the reversal and wish you all the best. I’ve heard it’s hard to find a place to have them done. The whole thing is so frustrating! Peace to you,
I just turned 33 but since I was 30 I’ve been feeling like the menopause is hitting me people don’t believe me because I’m to young but know that I’m reading all this I know that is because I tied my tubes 10 years ago. I need help on what to do with all my changes thank you.
I had my tubes tied and have been feeling the same way as you. I don’t know what to do about it. I thought of having it reversed, but it cost so much and insurance companies wont cover it. If anyone could tell me something let me know Please!
i had an emergency cesection and tubal lagation same day. was a horrible experience. especially because my first after three vag births. ive had all these symptoms,headaches. stomach aches. severe acne, pms, messed up periods mood swings,poor skin,insomnia,hormonal imbalance, andemotional issues. also painful periods. this is all news to me. im speechlessi im 44 and am losing hair. this is crazy
I read this and it was like I was reading something I had written. I am suffering too after my TL and so is my family. I had my surgery 4-24-2011 and had an extremely heavy period for 3 months then nothing since. I have gone crazy with anxiety,depression, and hot flashes. I am emotionally and sometime mentally unstable and it it all because of TL. Luckily my hubby is very supportive and understanding. Wish all you the best in finding help.
hello i have had my tubes tied for 10 years when i was 25 and have been trying to have them reversed for 8 because of the heavy periods, awful cramps (never had any before the surgery) i also suffer from fatigue, hot flashes, mood swings, severe depression lets just say all of the possible side effects. i’m miserable. glad to no im not alone, that didnt sound right well you no what i mean , good luck
me too…dont feel bad we are in the same boat!!! have your doctor check fsh levels…then get a copy of the blood work results & look at it yourself to make sure they really checked it..cuz they told me they did,,but they didnt..they checked everything but that!!
I have the same problems..tubal ligation syndrome is real,,those women are not crazy..its been happening for me for 2 years now & I am currently trying to get doctors to help me w it..awaiting the correct blood work results to try to get hrt!!!
plzzz email me with anything that might work for the horrible symptoms..maybe what your doc did for you..if they say they checked your hormone levels & they were all fine,,look at the results yourself and make sure they did the fsh estrogen part…cuz they didnt check mine..those are the ones they have to check..always look at it yourself..they havew to check the right hormones!!
Im so tired of getting the runaround from all the doctors about this..2 years of anxiety,panic,rib pain,night sweats,hot flashes,emotional issues..all after i got a tubal..its ruining my life & I wish doc would do something other than throw psych drugs at me that i refuse to take because i know this is a hormonal issue..i even have dark upper lip,& dark around my eyes..im gonna make them fix this or im gonna throw a temper tantrum next time i get the run around..if the doctors were honest about the side affectes of a tubal,i wouldnt have gotten one,& we wouldnt be in this mess in the 1rst place,the least they could do is b honest w me & help me fix it!
hi i went to the doctors and said i want my tubes tied i was suffering with depression my dad was dieing two weeks later i had surgery the doctor didnt even ask how i was feeling i now want more children and cant as i cant afford a reversal i also think my change is happening im having hot sweats im always tired moody but the doctors wont listen they just say im to young im 34
so i know im kinda late on this but i got my tubes tied February of this year. i have not been feeling well since. i didnt have my period for 5 months after getting it done when i finally get my period i have other problems pop up. idk whats going on but u can email me if u like . Thank you for listening
Hello, I had my tubes ties 3 years ago and since then my life has been a struggle to say the least. Tying my tubes was the worst thing I have ever done to my body. I have a ton of horrible PTLS symptoms and yet I cannot get one doctor to beleive me. They tell me that this could never happen due to TL and then either give me anti-depressants, birth control, or blood clotting medication to help with the HEAVY bleeding. I have had my thyroid checked twice due to being SO tired and having weight gain…but it’s normal. I have had my testerone checked since I now have NO sex drive, CBC, UA for lower abdominal pain, pelvic ultrasound to check for fibroids and more tests all of which appear normal but I am not my normal self. Anyone out there reading this DON’T ever tie your tubes it would be better to use birth control and risk those side effects then to possibly live with these side effects the rest of your life.
Thanks so much for posting about this issue! I just had my consult with my surgeon today for my 2nd c-section. First was an emergency, planning 2nd because I don’t want a repeat. She asked if I was at all interested in a tubal and I said yes, although NOT SURE, as I wanted to do my research. I’m glad I came here and also found a few other things on google that make me 100% positive I don’t want a tubal done. The only question I could think of to ask during my appointment today was if I’d still get a period (I had done absolutely no research on this until today). She said yes and that it would be the same as before. Well, hah. Apparently what I’m reading is that they can be worse and I already have terrible periods, heavy, and have literally passed out from the cramping pain. I can’t imagine them being any worse than they already are. And the hormone thing is really scary. I only took the Pill for a few months before I realized that it was messing with my hormones and I really dug into reading about the side-effects. I am not at all a person who likes to just pop a pill or take medication to solve a symptom and if I can avoid these problems that so many women have experienced, I will do so. It seems most of the men in our family just end up getting the V and don’t have any problems. That’s what me and hubby had decided on a long time ago anyway until the doctor mentioned the tubal to me today, so I think that’s what we’ll stick with. Thanks again!
Horrid nightmare I lived through for a year before I figured out it was all caused from my tubes being tied. Visit the link above if you want my full story. Be warned it is graphic at times but I felt it was necessary so other women could fully relate.
Amy Kat recently posted..There is hope and a cure for PTLS!!! I’m living proof!
I never was told anything about the affects of a tubal and hormonal changes and its been four years i wasnt able to afford to go to the doctor im 29 years old and before my last pregnancy i was perfectly fine happy never that angry and defenitley more confidentnow im angry all the time i get mad at the stupidest things im depressed all the time i cry atleast six days out of the week and i feel lost and trapped i hate it i hate being me i want help badly
Hi I ran accross your blog post while doing some digging of my own on PTLS… I have had a madrid of health problems right after I had my second child. This was 6 years ago my health has gone south ever since. I have seen specialist after specialist who are trying to cover up the symptoms and have stopped actually trying to figure out what is going on with me. I have even had spinal taps trying to figure out if some of what is going on with me was caused from my epidural. The only other thing that I did around this time was my tubal and everything started after that. I have just recently found information on PTLS and on the symptoms list I have about 90% of them and have been struggling to figure out why these things have been going on for the past 6 years. Please feel free to email me I can go more in detail on them.
From everything I have read and heard here and there, I highly believe all my symptoms could be related to having my tubes tied;and at this point I just want to know what kind of treatments, natural preferably, are there to try.
Thank you, sincerely.
TMI ALERT!
Way late, but here I go… After having three children with birth complications, and adverse reactions to multiple birth controls, I had my tubes tied. Example bed for six straight months. Tubal seemed to be my best option. Between the c-section and the air they used to get my organs out of the way, it was very painful. I also had a c-section due to my second child being 10lbs. 8.5oz. delivered vag. I hadn’t had the easiest of times with my cycle, but now… Back pain, head aches, nausea, clots, excessive bleeding and low iron levels despite iron pills, I go through a super plus and pad every hour and a half when its bad. Thanks for the info & good luck! I didn’t know about this syndrome either. I thought my issues were due to c-s but, now … Going to O.B. soon to try and sort this out.
I’m 29, I had my tubes tied 4 years ago after my 3rd child. I didn’t know anything about ptls my doctor never warned me of the possibility of going thru this. I didn’t have any symptoms of ptls until 2 years ago but I thought it was because things had change in my life. I only heard about ptls when I was online doing a little research about reversal. To this day my doctor says there’s nothing wrong and blames my symptoms on other factors in my life. You can also email me I’ll answer any questions that I can.
Heather can you please email me
please Heather help me understand this . i am feeling just like you and many others.
I recently had my tubes tied after the birth of my third child. No one warned me of what could happen to you afterward! Now I know I’m not the only one going through this. I wish I looked into it more before going through with it but I trusted my doctors and took their word that there are no complications except in 1% you can have a tubal pregnancy. I hope things get better but I’m slowly losing hope.
Hi,
I had my tubes tied after I had my son in 2005.It was a normal birth, no pain killers, no epidural, no tearing.
Before I had my son I’d always had super-heavy periods but no cramps, and the periods that came regularly.
After my son and my tubes being tied, I have pain in my sides and over my ovaries ALL of the time, and my periods are PAINFUL, heavy, unpredictable, etc.
I also developed fibroid cysts in my breasts.
My doctor says I am just sensitive to my hormonal cycle, have a lot of estrogen, etc and put me on Ortha Tri-Cyclen Lo but they haven’t done ANYTHING (on them a month now).
Anyone else feeling like me, in pain and worn out ALL of the time?
:(
Good Evening,
i agree with you that PTS does exist although doctors will not admit it. I had my tubes tied in Feb 2012 after my third baby and again a c-section. I have regretted it every day. I have considered having them reversed but am not sure about it because it’s expensive. I had a period for 6 months straight at first birth control didn’t help but now it has. I feel tired all the time. I can’t loose the baby weight, i feel depressed at times unhappy. I feel pregnant half the time. It has truly messed my body up in ways i never thought possible
I had my tubes tied in May 2010, It was the worst thing I could have done, my body hurts all the time before and after my period. It seems to only be getting worst. I didn’t want any more kids because my kids are 12yrs apart. While researching after I had my daughter I found out that the side affects were due to having the tubal ligation, I wouldn’t sugguest that any one get it done unless they had to. I would have much rather had the IUD or some long term birth control, I found a doctor who advised me that the tubal ligations put alot pressure on the area were your blood has to flow and that increases your pain level. After reasearching she was telling me the truth, so I’m stuck with a bad decision of getting my tubes tied and mine were cut not tied.
I had a TL in 2005. About a month after that the hot flashes and the crazy mood swings. Went to the doctor and was told that it was stress due to have two small children. As much as I tried to convince the doctors I didn’t feel right, the more they tried to convince me it was stress. To relieve the stress I started workingout. While workingout I couldn’t remember when I had my last period. When to the doctor again. Told the doctor I haven’t gotten my period. Was asked when did I realize this, and I told the doctor while I was in the gym. Doctor convinced me it was because I was working out. I tried to calm down my workout routine and still period jumping around like I don’t know what and these dang hot flashes. I had thick beautiful hair and now I have so much hair falling out. I was about 28 when I went to the doctor and told them something was wrong with me. I told him not to tell me it’s my diet, workout, the fact I have two small children, or stress. I was very angry and told the doctor this has been going on since 2005. This MAN had the nerves to tell me.. “ma’am, you are not as young as you use to be.” are you for real?
Well, then my reserch for TL began. I want to say the first night I cried so much. Recently, I found a military doctor who told me, without me saying a thing, “wow, A Tubal ligation has been the cause to many young women going into pre-menopause. Did you no that? Did your doctor tell you this before the procedure?”
My answer? Crying like a baby and thanking God that FINALLY a doctor agrees with me and the millions of mothers I read about.
Sorry so long.
PTLS is so real. I am a mother of three and decided to get my tubes tied right after my 3rd was born. LONG story short, I suffer from this syndrome so bad. I have horrible DUB, dysfunctional uterine bledding. My symptoms are, the irregular periods, hot flashes/night sweats, joint pain, pelvic pain and headaches. I have been to a couple different doctors and two ER visits. I am only 27 and very healthy. I’ve had ultrasounds, pap smears and a full blood work up. Everything is normal, except for a few hormones are LOW. I NEVER had any of these symptoms prior to my TL. I regret this surgery so every day of my life. I am saving up money for a reversal. This is very real and most likely is caused my a doctors error. Think about, GOD put everything in our bodies for a reason. It really makes sense if you do the research. I hope my post is helpful and informative to other women with these same symptoms. You are not crazy this is REAL!
Hi Heather, I’m Heather. =) I sincerely feel for you. I had my tubes tied in
August of 2008 following the birth of my son, via csection. I’ve noticed that since then I stay hot & sweat constantly, only have a period once every few months & constantly feel sad & depressed over not being able to have more children. I also constantly feel like their is a baby moving inside off me..I mean literally. I went to dr. about it…not pregnant. Needless to say it doesn’t help my desire for another baby. At the time it seemed like a good idea. I have 3 children & struggle to give them their needs. My bf didnt want anymore because what made 3 children for me..made 5 for him…not counting my dd from a previous relationship. He wanted me to get them tied becuz he didnt want any more children & at the end of the pregnancy when i’m tired & not wanting to “go through that” again, I agreed. I wish I had never done it & had used a semi-permanent form of birth control. I have dreams of one day getting a tubal reversal & having one more child, a girl with him. He tells me that if thats how I feel then we should rethink our relationship. Easy for him to say….at least he still has the option. I’m on medicaid & that doesnt cover tubal reversals as it is seen as a fertility treatment so if he ever changed his mind, not that he would, we would have to pay out of pocket which the cheapest i’ve seen is 2000. Sorry I know I’m rambling. I dont know what symptoms u r experiencing but I Just wanted u to know that u r not alone.
Hello,
I was reading your posting and I found somebody or somebody’s that is going thru the same things as me as I lay here in front of a fan suffering from another hot flash again! I wish I NEVER did this to my body I hate this feeling everyday. Mood swings, hot flashes, feeling pregnant, mad at the world, sad, depressed, happy, ect, ect… I wish my insurance would cover it or that wasn’t that expensive to have it removed! I would rather have the mirena in place then to deal with this for the rest of my life ugh!
I don’t want no more kids that’s not the reason for the removal I got more then enough 4 sons! I just hate the person I am after having this procedure. Lord please take this out of me ASAP please
Hi, Australia here, I too had a TL back in 1999, just to find out in the last couple of months about PTLS, finally an answer as to why my body has gone totally haywire, ladies doctors apparently been talking about this since the 1950′s so why are they not making it public that”some” women may be affected. For me it has been less than half a life, I would urge everyone to research, the only thing I don’t think you can tell is if you are going to be affected or not . But I too have been going through nearly all of the 40 plus symptoms, I will be trying my hardest to have a reversal.
I’m glad I came across this blog. I am having a scheduled C-Section at the end of this month and my doctor was offering to do this, …in fact I don’t believe I asked, but perhaps she just figured since I am 38 and mentioned it would be my last she would give me the option. I had reservations, and she said I had up until 72 hours before the surgery to confirm if I wanted her to go ahead with the tubal after my C-section. In the meantime I spoke with my sister in law, who mentioned that after her ligation she now suffers from very heavy periods. Well, that set my wheels in motion, I have normal/light periods and that alone is a pretty significant mark in the con column for me, then in further research discovering all the other side effects and hormonal imbalance possibilities I can solidly say I will not be going through with a tubal ligation. One of the biggest reasons I would have gone through with this in the first place was to avoid hormonal tampering with varying forms of birth control, so getting pummeled by early menopause after childbirth and or hormonal issues as a result of it would have really chapped my hide. Since I did not yet agree to the surgery I can’t say my doctor is negligent by not addressing side effects or possibilities, but I think before I inform her that I’ve decided against, I will ask and see if she is forthcoming with any of this information. Great blog and thank you for speaking out.
My wife had her tubes tied about 8 years ago and about 2 years later she started with extreme pain during her period after several visits to Gy and being told that it was nothing o do the operation she was given a hys.It is now 2years since the Hy and she is now suffering with despession and on tablets.In all this time no one has done a homone test on her.
I had my tubes tied 6 years ago after my third child. I am not just talking about a clamp mine were cut, tied and burned. I started skipping periods I went as long as eighteen months with out a period. Now I am having heavy periods where I bleed through a tampon ever two hours. My depression has gotten worse. I was told of the chance of skipping periods but not everything else that came with it.
I’ve had my tubes tied in 1996 i’m 38 years old.I have never had cramps before until after the procedure.I felt like i was still pregnant with the nausea and the sleeping alot. It felt like i was sad all the time.On top of that i have 5 kids i was 95lbs with my first one and 121lbs after my fourth one,my fifth one after the procedure i just kept gaining weight i am now at 225lbs.Bad part about it i still eat like a bird!!Now that i’m 38 I really want more kids!My insurance covered the procedure but they cant help me get them untied.I really feel like less of a woman now and i encourage any woman not to get this procedure done unless they carefully do their research!!It Sucks i made a bad decision at 21 years old and no doctor explained anything to me!!I feel Mamed!!
I am 37 yrs old and I had my tubes cut, tied and burnt back in 1999 after my 3rd son was born. Really was not my choice to have it done. But what was done was done I could not change what had been done to me. I have the hot flashes, constant sweating, insomnia, etc, etc, etc. talked to doctor after doctor and got nowhere at all except sent to a psychological therapist and loads of psych medications due to the anxiety, severe depression and so. But still nobody gets my point about what I am going thru. After reading all this info here I am wondering how a doctor can consent to practicing tubal ligations without giving All THE INFORMATION to his or her patient. I have wished since day 1 that I did not get the tubal done because of possibly ever wanting more children, but it has bad severely horrible over the past 8 or 9 years. I have told everyone that I know who wants to ”not get pregnant again” to NOT have the tubal done just resort to something else. I have tried to commit suicide over this..that is just how badly depressed I am and I am tired of being told ”it is all in your head” or”to just stop over thinking all this”. Thanks for this site.
OMG!!! I, first of all did not know there was an actual name for after getting your tubes tied. I cannot believe this is why I act so weird. I got my tubes tied in September of 2006, and I am now realizing the reason for me acting so different. No you are not alone, I am not ashamed to admit the symptoms are real. You can e-mail if you would like. Thank you for sharing.
I am 33 yrs old and had my tubal ligation in 2000 after the birth of my 3rd child. I was never told their was even a possibility of side effects upon having the TL done. I began having crazy symptoms with in a month or so after the surgery. I experienced the first of literally thousands of anxiety attacks along with severe depression. I was told this was all due to postpartum depression…although I had never experienced it with the first 2 kids. A few years later the anxiety continued and turned into disabling OCD…which I now realize was my way of trying to gain some form of control in what was happening to me physiologically. Each month as my cycle came near I would go through fits of rage and uncontrollable crying spells. I began to experience migraine headaches so severe that I was visiting the hospital on a weekly basis. Now mind you…I had never put a correlation to my tubal ligation until 9 years post surgery. I just thought that chronic fatigue, migraine headaches, hair loss, blood clots, depression and the list goes on were all a normal way of life for most women! It wasn’t until about 1 1/2 years ago that I accidentally stumble across an article regarding post tubal ligation syndrome and the side effects other women felt they were experiencing from their surgery. It was upon reading the side effects did my light bulb finally go off and the dots began to be connected for me. Right around this same time I had just been told by my PCP that I was probably going through early menopause…at 31! I knew this couldn’t be right as my mother was 50′s and so was my grandmother when menopause occurred for them! Later that week I was also diagnosed with a fibro cystic breast condition which can be another side effect of TL. I couldn’t believe what I was hearing! Yet with all of these symptoms the closest thing I could get from my Dr was..”well many women have complained of these side effects, but since their is no evidence of TL causing issues we must conclude it doesn’t exist!” Upon a consultation with a surgeon regarding my breast fibroids, I was told that sometimes when a women gets a TL, at times the extra estrogen gets lodged in the breast tissue and causes a lot of other issues as well! I was told if I was looking for relief to either have 30 days of chemo or get a tubal reversal! Needless to say, I am passing on the chemo and will be getting a reversal on 1/11/2013. He concluded..the only hope for restoring correct hormone balance was to allow the body to function the way it was originally designed. I am praying and believing he is right.
I have been going through PTLS for almost six years. I had no idea what I had or that it even was related to my TL until about a month ago. I’ve seen at least 8 different doctors, therapists, psychiatrists ets. and they had me on anti-depressants, and anti- anxiety meds for years. I never once experienced any mood disorders until I had my tubes tied in 2007. I had not thought to do any internet research about my condition partly because I was so embarrased by it. I finally got a new therapist to listen to my thought that my symptoms were related to my TL and she did a quick internet search that pulled up an article on WebMD. The article barely explained what PTLS was but it was enough to give me hope that I wasn’t alone. Now, a month later, I have found hundreds of articles, blogs, webpages, support groups, and even an online petition demanding that congress make it mandatory that doctors disclose the risk of PTLS to all patients before doing a tubal surgery. After reading everything that I could, I have found that I am fortunate that most of my sypmtoms were emotional and not so much of physical. So many women are suffering migranes, extreme menstrual cramps and many other ailments.
I had my tubes tied 2 and a half years ago. The first year or so after I had such heavy periods that I would be dizzy and nauseated. Now this past year I’m reversed…I will have a period and then go months without having one…I’m moody…I have hot flashes…I sleep a lot …etc! I knew it had something to do with my tubal but never considered early menopause! I’m only 23 bout to be 24! SOMEONE GIVE ME ADVICE PLEASE…DO I NEED TO GO SEE A OB/GYN OR LET MOTHER NATURE RUN ITS COURSE?
I’ve had my tubes tied 12 yrs ago after my 3rd child. But I’ve been noticing lately I’m crying laughing then crying even sometimes I get bad pains. I should of never had them tied. My fiance and I want to have a baby. I even looked up things online and there is bad side affects to having your tubes tide. My obgyn even to test for pre menopause and menopause and all came out neg so it is from my tubes being tied. If any more info please help.
I planed to have a tubal ligation after having my fourth child on october of 2011. I had to sign papers in order to have it done, but I didn’t know it would be a c-section since it was the fourth child and the first three were normal deliveries. It was an emergency c-section and I don’t know if they did the tubal ligation and how do I KNOW if I have the tubes tied? Do I have to come back to my OBGYN clinic or what do I have to do?
I am 37 years old and two weeks ago i had my tubes tided. I have been on an cymabalta for about 5 years and have been doing fine until i had this surgery. I feel so overwhelmed sad and i hate everything about me and my life right now. Don’t get me wrong i dont want to hurt myself but i have never been more depressed in my life. I am so so mad at my doctor, he said you will be find in and out no problem. If i known that there was even a possibility of my hormones going crazy and my depression worsening i would have never ever ever had the surgery. I had postpartum 12 yrs ago when i had my son and this is far worse. Really feel so lost right now. Went to my family doctor and it even gets worse.
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Hello, I had a Tubal after my second child back in “93″. Before I had it done I never had bad cramps and my flow was very lite. The doctor told me that it wouldn’t effect any of that. And he couldn’t have been more wrong. My cramps got worse right after and most of the time they are so bad I can’t stand it or get out of bed, as for the flow it doubled!! I am now 41 years old and I have been having pain in my lower right abdomen and I have been researching and I found a site about PTLS. And I could believe what I was reading…there is a list of 44 systoms and I have everyone of them. I don’t want anymore children so I don’t want my tubal reversed. So I am considering a hysterectomy. Please if anyone can give me some advice it will be greatly appreciated.
I’ve had my tubes tied since 8-23-2010. It took me about 6 months to realize that something was different. I had this done on my fourth c-section and thought that all the side effects I was experiencing were merely post surgery side effects but they didn’t stop. I think one clue was the hot flashes and the hemmoraging blood clots the size of golf balls. Then 2 cycles a month. I never knew when they were coming or when they were going. Before all of this I was 28 day cycles like clockwork. If you would like to know the rest of my symptoms (39 and counting), I started Vlogging on you tube about my story. I have wanted to do a written blog also so that it may help other women out there to find answers. I was so alone in this and I thought I was going crazy. There were no warnings of future side effects and honestly I didn’t even think it was the TL. It wasn’t even on my mind and then one day it all clicked. As a woman, you ask yourself so many questions when something is this different. I didn’t feel like myself anymore. My mood swings were all over the place. My hair was falling out and thinning. My stress was through the roof. I knew hot flashes were a sign of menopause so I knew at age 34 I was NOT even supposed to be going through this or even perimenopause. I had just had 2 babies within the last 2 years. I had never in my life had ppd but everyone kept accusing me of it. They also accused me of having other mental issues but how do you go from perfectly fine to pregnant and hormonal, and after having surgery to an emotional wreck and crying one minute and full of rage the next? I didn’t even know I had filshie clips until 6 months ago but I could tell you EXACTLY where they were bc of the sharp pains I have. I have also never been allergic to acrylic until now. It’s in most sweaters and fuzzy clothing so I have to look at every tag before I buy clothes. 4 months after TL, I got a sweater for Christmas. I wore it one time. The hives didn’t go away for 2 weeks they were so bad. There’s a lot more to my story. I haven’t V-logged in about a month or so but you can find them through my gmail. I hope that you’re able to get reversal or relief. I am just now seeing this blog. You may have already found our support groups. I’m not sure. My empathies, Sandy
Hello… I had my tubes tied in June of 2002, had them reversed in August 2012! I had a whole mess of things start happening after they were tied and I was simply told this would pass… after dealing with female problems and told I would never have a child from the age of 17 on, I didn’t know what to think especially since my daughter was now 6 weeks old! I was told I would not survive the pregnancy and I did… so why should I believe anything else? Wishful thinking I suppose. So I married me High School Sweetheart after a 12 years detour and after an eptopic pregnancy in March we decided since I was going to have to have surgery one way or another lets just get my tubes reversed and if we end up pregnant great if not thats okay too.. Surgery was in August 2012… after my tubes we tied my periods were regular, since they have been untied they have been all over the map and making me insane. While they were tied I could feel ovulation I knew exactly what my body was doing, Now I don’t know anything, nothing is right. Now I understand it could take a few months to get my body back to normal but this is awful!! I am hopeful that the surgery will work and we will end up pregnant, I am also hopeful that the PCOS wasnt laying dormant and we woke it up with the surgery. Lots to think about…
I just had my 4th child in October. I am just 26. I had this procedure done and have only noticed the first month a hot flash or two and at 3 months later now a menstrual cycle again but not anything alarming. I did do research before and asked many friends about this operation vs a 5 or 10 year plan with an implant, I heard so many negative things about implants vs the operation . Overall I felt tying my tubes was the best option for me.
I had my tubs tied a year ago. The worse thing I have ever done. My sex drive us dying more and more everyday, I’m dry I never want to do any thing with my poor husband. I have pain every month when I ovulate. I have so many of the symptoms the list would go on forever. My depression is worse then it was even in my life. At this rate I would rather have more kids. Sex is painful. I want me back anyone know how to get our bodies back? I’ve gotten bladder infections like crazy since this and yeast infections almost every month. I hate it.
I had my tubal in May 12 when my 6th child was 3 months old,I was still .bf him do never got my first period until sound Aug/Sep, first couple were horrendous but put it down tl first ones after baby, then around November the symptoms of ptls started,flushes , tiredness , extreme fatigue, numbness/ electric shock feeling in hands arms legs, crying for no reason, constant pain in ovaries, abdomen, swelling in abdomen and hands, complete loss of libido, have only used iuds since 03 and had 4 children in 5 years and never ,ever felt like this,I feel ok week after this and that’s it for the month, hormonal wreck from ovulation until period ends, I’m someone who doesn’t regret this but I do this, was told only side effect would be a eptopic pregnancy
Chris x
Sorry typing on phone so lots of typos x
I understand and have had lots of health issues after my procedure. For 4 years I thought I’d had what I signed for which was the essure implants only to find out I was given a tubal ligation. I feel so violated…………and livid with myself for not knowing what was taking place, and the healthcare professionals I trusted to care me. I went to my Dr office complaining saying I thought the nickel implants was making ne ms sick just to learn the truth. I’d say be cautious.
i am 34 yrs old and had a tubal ligation two years ago when after i had a c-section with my 2 yr old, she is my third child and i didnt wanna take the chance of getting pregnant again so my husband and i decided that i needed to get this done but every since i have had my tubal ligation i have had nothing but hormonal problems and depression and anxiety i didnt research it before i had it done but i wish i had because now im on anxiety meds and never had any of these problems before and i can tell the difference in my hormone shifts since i’ve had it done and now just recently i have been having a few periods in between my periods and the drs. are saying this is normal but i just wanna put my story out there and to let everyone know that if your gonna have a tubal ligation please do your research first because if i would of known before i had it done what i know now, i would have never had it done
I am 22 years old & I can totally agree I had my second child and got my tubes tied after a ceaserian section my baby is a year now & my cycle hasn’t came on yet the doctors are tossing me around from obgyn to neurologist to dermatologist to now a endocrinologist my stomach look so bloated like I’m still pregnant no matter Wat I do I can’t drop the weight & I get so hot at night & seem so angry about the simplest things I never breast fed & my breast keep producing milk I dnt no wats going on & the endocrinologist scheduled my appointment 2 months from now ugh!!!!!
Hello,
just came across your post after typing into Google severe PMS syndromes after tubal ligation. Here is my story. I was never this depressed in my life and I PMS like crazy. When I had my last baby #4, it was a high risk pregnancy, the doc suggested to get my tubes tied. Since I almost died I agreed. I wasn’t told it had any side effects. After I had it done PMS wasn’t as bad but I had sudden facial hair growth, then depression….It has been 4 years and I can’t stand the two weeks before I get my period. My life is out of whack during the two weeks. When I looked up the symptoms for PTS i almost cried because I have more than half of the symptoms! Why doesn’t anyone inform you about this! I am glad I found your post now i can show my husband I am not nuts after all.
Thank you!
I have severe depression, fatigue, facial hair, cramping, acne, mood swings and heavy mentruals with huge clotting.
I am suffering now with severe fatigue, terrible acne and facial hair, depression, no libido, etc. I had my tubes tied during c-section almost two years ago. It has gotten to the point I’ve sought medical help from my ob/gyn and the bloodwork has been done, just waiting for results.
*Note: twelve hours after my 2nd (and last) c-section, after HOURS of complaining of more than normal pain, an ultrasound was done and discovered I was bleeding internally. MY cbc before surgery was 32 and twelve hours later was 18. I needed a transfusion and was told by docs that it “can happen” with caesarians.
I had the T.L. Done in ’06. Had I known then what I know now I would never have done it. Feel free to email me all the questions you like(riarenil@yahoo.com)
I have one thing to say to anyone considering this- Do. Not. Do. It. Research it first- read everything you can find about PTLS. You might get lucky and not have any problems with it.
But what if you do NOT get lucky? Can you (really) see yourself living with some, most(like me- I have all but 4 ish of listed PTLS symptoms) or all if these symptoms the REST IF YOUR LIFE. I am miserable- constantly. I wish I could go back in time and just decide to stay on birth control rather than this.
I wish I read this before I allowed my doc to con me into the procedure, I even asked HER if there was any problems with hormones after TL, she said absolutely not. I listened to her and after reading some horror stories decided my doctor knew best…well 2 years later my symptoms continue to get worse. My testosterone levels are high and so are some others. I have severe acne…never ever had more than one tiny zit before this!!! I have heavy periods that last for over 14 days….cramping, hair growth, joint issues, sleep problems, severe anxiety and crashing fatigue….not something I ever had before. I used to be amazing and enjoy life, now I just exist. My 5 kids and husband deserve better. I pray to get surgery to fix this and I pray that my symptoms will lesson. God willing this will get better.
Omg I have the exact same issues.
I also had my tubes tied. I got pregnant 3 months later and had another baby. I then had the tubes re done at my caesarean, cut and burned this time. I have had the symptoms of PTLS ever since and regretted it. The worst symptoms I get are the flooding period and clots and also terrible mood swings that have almost broken up my relationship a couple of times. I wish I had known the potential side effects as I would have never had it done.
I had a tubal after my daughter was born in 2008 I would’ve been 25 then. Everything has been fine up until now which is 2-19-2013. I use to have regular periods but haven’t had one since the beginning of January. I also am getting extremely tired here lately and have little to no energy, my boobs have become tender and my sex drive is totally gone. Honestly I feel like I’m pregnant but I took a pregnancy test and it said negative. I never knew of the early menopause thing when getting my tubes tied nor do I know the symptoms of it. Do u think what I’m experiencing can be from my tubal? Feel free to email me.
Hi Jane,
I’m sorry you’re struggling with these symptoms. I’m not able to tell you if this is related to your tubal, but it seems a lot of us have so many of these symptoms in common after having a tubal. I hope you can find a doctor you can trust to talk this over with…many docs don’t have much information to help either, since there are no studies being done, unfortunately.
I wish you all the best and I hope you find some answers.
Heather
Hi Heather,
I too have been suffering with terrible problems since having my tubal ligation in 2003. My cycles seemed to go down hill right away. I’ve always had very smooth, quick, regular cycles with no pains or problems…until the surgery. Now I’m terribly hormonal, going through some mild depression that seems to only be getting worse, I have heavy, irregular cycles with cause me extreme fatigue & pains (Cramps & an achy body) I’m emotional, I have no sex drive anymore, suffer from really bad headaches, ovarian cysts (Which I never had to deal with before 2003) I could go on & on..
I’m now looking into having a reversal & hopefully regaining some of my life back. I’m 34 & should be living to the fullest, but nearly every day lately has been a struggle lately.
Sincerely,
Jeanee’
Hi Heather,
I too have been suffering with terrible problems since having my tubal ligation in 2003. My cycles seemed to go down hill right away. I’ve always had very smooth, quick, regular cycles with no pains or problems…until the surgery. Now I’m terribly hormonal, going through some mild depression that seems to only be getting worse, I have heavy, irregular cycles that cause me extreme fatigue & pains (Cramps & an achy body) I’m emotional, I have no sex drive anymore, suffer from really bad headaches, ovarian cysts (Which I never had to deal with before 2003) I could go on & on..
I’m now looking into having a reversal & hopefully regaining some of my life back. I’m 34 & should be living to the fullest, but nearly every day has been a struggle lately.
Sincerely,
Jeanee’
Wanting you all to know i was just getting started on doing another research all over again 10 years latter… after, the 15 years ago when i crashed. There is a great need to get these messages out!! If we could each take the time to send this link to the docotors who have NOT imformed us and overlooked the seriouness in risks and percentages of side effects. Maybe the word can continue to get out to them ….and our vulneralbe sisters. Somehow there must be a way. Because the Ameridcan Gynocology System is not training our OBGYN’s in our plight …obviously!!!!
God bless each of you for sharing. This post below was as applicable and the same 15 years ago, and still, sounding as though…. hello, not alot of change!!!! Scarry, to say the least in what is being done to us.
…Sarah February 27, 2012 at 10:41 am
I have not had my tubes tied, but I do want to tell you that there are several things OB/GYNs do not tell, or are not up to date on. Tubal Ligation is one of them. I’ve known several women to have tubals or hysterectomies. All have suffered some variation of pre-menopause, depression, general anxiety, or panic disorders.
edit….
see it clearly March 5, 2013 at 8:45 am
Your comment is awaiting moderation.
Wanting you all to know i was just getting started on doing another research all over again 10 years latter… after, the 15 years ago when i crashed. There is a great need to get these messages out!! If we could each take the time to send this link to the docotors who have NOT imformed us and overlooked the seriouness in risks and percentages of side effects then maybe the word can continue to get out to them ….and our vulneralbe sisters. Somehow there must be a way! Because the Ameridcan Gynocology System is not training our OBGYN’s in our plight …obviously!!!!
God bless each of you for sharing. This post, below, was as applicable and the same 15 years ago, and still, sounding as though…hello, not alot of change!!!! Scarry, to say the least in what is being done to us.
…Sarah February 27, 2012 at 10:41 am
I have not had my tubes tied, but I do want to tell you that there are several things OB/GYNs do not tell, or are not up to date on. Tubal Ligation is one of them. I’ve known several women to have tubals or hysterectomies. All have suffered some variation of pre-menopause, depression, general anxiety, or panic disorders.
After I had gotten married and given birth to my fourth child I decided to get my tubes tied. I have been battling depression, heavy blood clot menstrual cycle, a hair face and hormonal changes. I want to get it reversed just so I can go back to my being me. I put in my system ant this post came up now I no longer feel alone. But I want something to be done.
Facial hair I meant to say.
I’m a PTLS survivor and very active advocate for spreading awareness. I’d love to help answer any questions you’re researching. I’m sending you an email now! My story is listed on my blog to help other women know they are not alone and we also have support groups on facebook. Please look us up if you ladies are struggling. We have lots of helpful articles that you could print and take to your Dr.
Amy Kat Barnett recently posted..My Post Tubal Ligation Syndrome PTLS Story
anytime anyone ask me if they should get their tubes tied I recommend them not I’ve had my tubes tied and I’ve been through a major depression I feel broken and it’s actually lead me to looking into having my tubal ligation reversed. it’s really not something I recommend anyone doing I had it done I’m only 24 its been on for 3 years and I did it to make sure wouldn’t have any more children with an ex I was with ( who was very physically abusive and caused a miscarriage). I’m no longer with that man I’m with another man in were engaged and where wanting to have a child and of course I can’t I’ve actually look into it and it’s only 6200 dollars to have it reversed. so that’s the plan and hopefully I will get back to my regular old self before I had my tubal ligation.
I had a tl over 16 years ago and have suffered from depression, anxiety, super heavy menstrual cycles, horrible cramping, fatigue, and finally understand what is going on with me. I have all the classic symptoms for ptls. For years I have gone to doctors and they would prescribe me with anti depressants, birth control….I’m 45 now and still suffer with this. At least now I know what I have.
Hi i had my tubes clamped about 7yrs ago because my mother in law advised my surgeon that’s what i needed done( i found this out after my surgery) i was going in to surgey to get a cyst removed of my neck but won i came out of hospital i still had th cyst nd stichers in my stomach instead nd since i had this done i have bloating that bad i look like im 9mths pregnant all the time ,i have bad mood swings ,teary at times ,tied, no desire in have sex,i don’t like socializing because in ashamed of th way i look ,nd no matter wat i do i cannot lose my stomach i have seen doctor after doctor nd they all tell me in just obese one of the doctor’s id said she had heard of my complaints before nd just laughed. But before i got my tubes clamped i weighed 87the nd since i got them done i know weigh 146kgs nd i have trouble trying to find nice clothes i want even get undressed in front of my partner blog uh way i look i am trying to get the money together to get my tubes reversed but being a single mum of 5 beautiful children its a bit hard. If i could turn back time i would NEVER had gone to the hospital that day.
im only 27 and i had a ligation done in january 2012, and i have expirience the most horrible time of my life, hot flashes, mood swings etc,
i am 23 i have 4 kids,and have had an ectopic pregnancy w/twins,and just recently had a misscarriage,so was kinda pushed into the whole tubal thing by doctors and family,and didnt want to go through another miscarriage,so just recently had tubes done almost 2 weeks ago,and i feel different ,as in dont feel like myself,and my period is very irregular since the tubal,and my menstrual cramps are way more horrifying,i am starting to think i didnt make the right choice for me
OMG! I am so glad I found this site. Where to begin. I had a tubal in 2007 2 months after my 3rd child. My milk immediately dried up even with oral meds. I was depressed because of that and attributed my increasing mood swings to those changes. Well things progressively got worse for years. In November of 2010 I had to stop working because I was getting such bad flare ups with body swelling, joint pain, vision loss all sorts of things (now I am 36 and have been diagnosed with autoimmune and I’ve already had a brain aneurysm coiled so I never thought anything of PTLS). My periods became very irregular in the past year so my doctor put me on progesterone. That worked for about 4 months but then it seems my body got used to that and I have been bleeding 5 of the past 6 weeks. And I mean bleeding!!! Last night I felt like I had an ovarian cyst and it dawned on me “how would I pass it since I have a tubal?” I have literally passed them before. That brought me to our trusty friend Google where I cam across PTLS for the first time ever and it explains every single symptom that is not explained by my autoimmune disease. I was excited, scared, pissed, every emotion you could think of. If I know what it is then I can figure out how not to feel like crap right? One can hope. I have a message into my GYNE. They don’t have office hours on Fridays and this is something I want to sit down and talk to him about and have plenty of info to share with him as well. He has delivered all of my kids and he is a great doctor and I am not angry nor would I be mad if this is what the problem is. I just want it fixed so I can be the mom my kids deserve. Bottom line! Thank you so much for sharing this. What I don’t understand is how I’ve seen about 45 “ologists” in the past 6 years because of my autoimmune and they all have the same info I do…they all ask about surgeries so they all know about all of my medical history…yet I’m the one who has to hear about it on Google because I wondered where my ruptured ovarian cyst would go?? LOL! Go figure! I will keep you posted!
I had a tubal almost 5 months ago and feal like I’m going threw menopause also
And I’m only 23
Hey there. I had a tubal performed in the hopes that it would prevent regrowth of endometriosis. I have never had a pregnancy, to my knowledge. I’d like to point out to all of you ladies that many, if not all of these symptoms can be caused by the changes in the body post-partum, and that many women begin peri-menopause in their 30s. You need to speak to more women who have had them OUTSIDE of post-partum scenarios before you can draw any conclusions. The vast majority of you seem to have had the tubals completed concurrently with a c-section delivery, no? well, pregnancy, while natural, is hard on the body-we all know that. and pregnancy can wreck you hormonally for months to come.
The other thing to note is that a tubal shouldn’t modify ANYTHING hormonally, as all the “parts” are still there, just blocked off, similar to a vasectomy. This is a very different procedure from, say, a hysterectomy (full), where hormone-producing tissue is removed. Aside from, say, the 1st month or so where anyone’s body might be whacked out from being poked around in, the tubal and the inflammation caused from the surgery shouldn’t change the body’s cycle dramatically. This makes me think there are other factors here.
Food for thought: ladies who had tubals-how many of you had them completed immediately post-partum? the ones that did not, were you on hormonal birth control prior to the tubal, and did you stop that after? those could be factors for mind/body changes as well.
I will state that I had a puffy waistline for about 8 weeks after my tubal, which was done about 8 years ago, but otherwise haven’t had any real issues.
I am 33 years old. Had my tubes tied about 10 years ago after my 3rd kid. Since then, my periods,mood swings,everything has gotten worse but I really thought it was b/c I was getting older. I can’t afford to go to a doctor,but I am wondering if I have this too!
Hi Amy,
While much of what you’re saying here can definitely be the case, there are a vast number of us that definitely have complications (on-going, life-long) after having a tubal and because of the tubal only.
I have had three babies. My body definitely went through MAJOR things after each baby. BUT, with the third, only after a tubal, my symptoms continue and actually continue to get worse. Yes, I’m in my 30′s and premenopause is a possibility but it would be odd that it would coincide exactly with a tubal. After the fact, my doctor did admit that having a tubal can put some women into menopause. (Long before they would have “gone there”) I wish I would have known that.
I have also talked to many doctor and midwife friends who DO see the correlation between tubals and psychological and physical health declines. Sadly. When the blood supply is cut off from the ovaries, it does change you hormonally because your body is confused–thinking the ovaries are gone.
I do always tell women who contact me that any number of factors and conditions can be the actual cause–that it may not be the tubal, but for some of us, it is definitely the tubal ligation that causes these on-going life-changing symptoms.
Thank you for your input,
Heather