Matt Mooney is here today and I hope you’ll take a moment to read his words. The message within this post is something near and dear to me. Escaping pain will steal joy.
Please welcome Matt, the author of A Story Unfinished–99 Days With Eliot:
Ginny & I found out at 30 weeks pregnant that something was seriously wrong.
Everything up to that fateful ultrasound had been normal- well, when you’re having
your first child you probably stand in no position to define normal. But it seemed
that way to us.
All of a sudden, the doctors trudged back into our room with heads down, and
now it was anything but normal. We were told that the baby had some serious
complications and problems that needed addressing.
In hindsight, I cannot say what stuck out to me in the precise moments that they
relayed this information to us. But I do know what stands out to me from where I sit
today.
the baby.
That three-word article typically easy to discard in any bit of communication,
now trumps all other words spoken that day. Words of heart problems, potential
surgeries and numerous other abnormalities all fade into the background of that
tiny word-
the.
Because up until this very point in time, all talk of coming child had been
encompassed in a starkly different vernacular.
It had been our baby every time before this one.
Was there cognizant effort on anyone’s part to turn the page on how we were
communicated with? I doubt it. The mouth merely follows the heart, and the heart
was telling these doctors that everything had changed.
And this unconscious word exchange explains so much. It had all changed.
In days afterward, we could be found seeking any and all information on Trisomy
18- the diagnosis we were handed. We fashioned birth plans to outline what
measures we wanted taken on the child’s behalf and toured the NICU, the place we
would end up- if everything turned out in miraculous fashion.
Eliot did come and the 99 days with him were more than miraculous.
As I think back on all of it- the beauty that his life beheld and the pain that I now
know intimately. I see that this two-word two-step so precisely reveals our
tendency to run from pain and hurt and sorrow. The child is the language of selfprotection. We felt within ourselves an overriding desire to weave layers of
covering for our hearts. By God’s grace alone, instead, we leaned into what we knew
could kill us.
This was the decision that made all of the difference for us, and yet the very
determination we could not will on our own accord.
I now see clearly what no one could have convinced me of: when we shield
ourselves from deep pain, we shield ourselves from overwhelming joy as well.
The world aligns in a chorus of either-or and markets joy and beauty as opposites
from the lowlands of pain and anguish. In Eliot, we found the best and the worst
all intertwined in a package deal. It always is. A life of protection and running may
produce a life unscathed, but an unscathed life is no life at all.
The child was our child.
:::::
Thank you, Matt.
You can get your copy of A Story Unfinished on Amazon or at Barnes and Noble
You can keep up with Eliot’s family on Matt’s blog, The Atypical Life.
{ 2 comments }
So moving. Thank you for sharing this with me. I am struggling to say what is in my heart. You have made a difference in my life too. Thank you for teaching me “I now see clearly what no one could have convinced me of: when we shield
ourselves from deep pain, we shield ourselves from overwhelming joy as well.”
God’s rich blessings on the three of you.
i remember elliot so well!!! i followed your blog as you chronicled his amazing life, and i cried when the 99 days were over, and you said goodbye for now. i lost track of your blog, but thoughts of elliot and the love you had for him, and the courage of each of you, often crossed my mind. i will never forget him. i am excited to read his book.
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